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Kenneth Lhamon Kalamazoo, Mi USA
Hello I was found to have NS shortly after birth and have quite a bit of the health problems I am currently blind they are not sure if it has to do with NS at this time. I have Aortic and Pulmarry Stionis of the heart. I have struggled in school with the problems assoisticted with NS and was in and out of the hospital all my life. I am doing much better now that I am in my mid 20s but still have quite a bit of troubles, I am currently going to a tranning center to train me to live on my own being blind and to help with the problems that I had so I can llive on my own. I have a older sister that has it but she does not have all the problems that I do not even close . I still do have some learning problems but is taking them one day at a time |