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Growth Charts for People with Noonan syndrome (Adobe PDF)

Noonan Growth Charts Males 0 to 36 Months

Noonan Growth Charts Males 2 to 20 Years

Noonan Growth Charts Females Birth to 36 Months

Noonan Growth Charts Females 2 to 20 Years

Growth Hormone Information

Norditropin® Growth Hormone Therapy

 Adults and Noonan syndrome

List of places with clinics for Adults with congenital heart disease

Congenital heart Groups for Adults

 Labs that can Test for the PTPN11 gene & KRAS gene

GeneTests Clinical Labs- lists all labs that test for the PTPN11 gene

Correlagen Diagnostics, a CLIA certified genetic-testing laboratory

Noonan Syndrome Testing at Harvard Medical School/Partners Genome Center

KRAS-Related Noonan Syndrome Labs

 

Health Alerts

Johns Hopkins Health Alerts Topic Page

 

The Family Village Library

Your source for information about disabilities.

Noonan Syndrome / Family Village Library

 

Learn More About It * Web Sites * Search Google for “Noonan Syndrome” …

 

Search useful internet resources for the general public.

Linketeria Website Directory - Search useful internet resources for the general public. Websites are listed by popularity and sites that exchange links are clearly labeled. Webmasters submit your site and get free promotion instantly!

 

Bundiebaby Medical Support Apparel is now available to families with children who have special needs so that you, too, can… Bundle your baby with ease.

 

Links to the best articles on Tiny Titan and NS

Battling Back from poverty

Special children’s Tiny Titan book review

 

TNSSG

NS/ACM (New 10-13-06)

Spanish article about Noonan syndrome SÍNDROME DE NOONAN

The Noonan Syndrome Support Group, Inc. Home Page

Noonan Syndrome A Historical Perspective (New 4/21/05)

Founder for TNSSG (Wanda’s site)

 

Free tool provides you with information on how

well the hospitals in your area are doing

Hospital Compare - A quality tool for adults,

including people with Medicare

 

Mechanism  to access healthcare reimbursement for those without private coverage plus so much more

Adobe PFD document: Access to Care for Children in MD with CKD & ESRD 1 16 04.pdf  These documents identify all the mechanism in these states that provide healthcare reimbursement for those without private coverage - it goes over how to access Medicaid, Medicare, CHIPS, and whatever prescription drug programs, Federally Qualified Health Centers, etc are available in that state. While there are several areas specific to kidney disease the information is otherwise generic. Links within the documents connect you to that states programs. www.kidneyadvocacy.50megs.com