Growth Charts for People with Noonan syndrome (Adobe PDF)
Noonan Growth Charts Males 0 to 36 Months
Noonan Growth Charts Males 2 to 20 Years
Noonan Growth Charts Females Birth to 36 Months
Noonan Growth Charts Females 2 to 20 Years
Growth Hormone Information
Norditropin® Growth Hormone Therapy
Adults and Noonan syndrome
List of places with clinics for Adults with congenital heart disease
Congenital heart Groups for Adults
Labs that can Test for the PTPN11 gene & KRAS gene
GeneTests Clinical Labs- lists all labs that test for the PTPN11 gene
Correlagen Diagnostics, a CLIA certified genetic-testing laboratory
Noonan Syndrome Testing at Harvard Medical School/Partners Genome Center
KRAS-Related Noonan Syndrome Labs
Health Alerts
Johns Hopkins Health Alerts Topic Page
The Family Village Library
Your source for information about disabilities.
Noonan Syndrome / Family Village Library
Learn More About It * Web Sites * Search Google for “Noonan Syndrome” …
Search useful internet resources for the general public.
Links to the best articles on Tiny Titan and NS
Special children’s Tiny Titan book review
TNSSG
Spanish article about Noonan syndrome SÍNDROME DE NOONAN
The Noonan Syndrome Support Group, Inc. Home Page
Noonan Syndrome A Historical Perspective (New 4/21/05)
Founder for TNSSG (Wanda’s site)
Free tool provides you with information on how
well the hospitals in your area are doing
Hospital Compare - A quality tool for adults,
including people with Medicare
Mechanism to access healthcare reimbursement for those without private coverage plus so much more
Adobe PFD document: Access to Care for Children in MD with CKD & ESRD 1 16 04.pdf These documents identify all the mechanism in these states that provide healthcare reimbursement for those without private coverage - it goes over how to access Medicaid, Medicare, CHIPS, and whatever prescription drug programs, Federally Qualified Health Centers, etc are available in that state. While there are several areas specific to kidney disease the information is otherwise generic. Links within the documents connect you to that states programs. www.kidneyadvocacy.50megs.com
